There is still time to register for our upcoming educational webinar, The Rare Disease Disability Toolkit with Rare Voices Australia, taking place on Tuesday 28 July 2026.
Living with Myasthenia Gravis (MG) can present different challenges for every person. While some people experience fluctuating muscle weakness that affects everyday activities, others may find that their condition impacts employment, mobility or independence. Understanding the supports that may be available can make an important difference.
Myasthenia Alliance Australia is pleased to welcome Fiona Lawton, Disability Advocacy Manager for Rare Voices Australia (RVA), for this informative webinar exploring the relationship between rare disease and disability. Fiona leads the national Rare Disease Disability Project and brings more than 25 years of experience in government, disability advocacy and stakeholder engagement.
During this webinar, Fiona will discuss:
- When a rare disease may also be considered a disability
- The Rare Disease Disability Toolkit and how it can assist people living with rare disease
- Disability advocacy and self-advocacy
- The National Disability Insurance Scheme (NDIS)
- Supports that may be available beyond the NDIS
- An opportunity to ask your questions during the live Q&A session
Whether you already receive disability supports or are simply looking to better understand what services may be available in the future, this webinar will provide practical information and trusted guidance.
Webinar Details
Tuesday 28 July 2026
12:30pm to 1:30pm AEST
- NSW, VIC, QLD, TAS, ACT: 12:30pm to 1:30pm
- SA, NT: 12:00pm to 1:00pm
- WA: 10:30am to 11:30am
If you can’t attend live, a recording will be made available on the MAA website after the event.
Register today using the link below.
https://rumi-live.zoom.us/webinar/register/WN_sGU-mCfbTMWWadz69_FYVQ#/registration