It is a new year and we have a once in a generation opportunity for new treatments for Myasthenia Gravis! The Pharmaceutical Benefits Advisory Committee (PBAC) will assess 4 new treatments for generalised Myasthenia Gravis (gMG) at its meeting in March 2025. You can make a personal submission by 29 January 2025 highlighting your lived experience as a Myasthenia patient to add to the submission by the Myasthenia Alliance Australia (MAA) as the peak representative body for all Myasthenia patients in Australia.
Not sure about this unique opportunity to support new treatments for Myasthenia Gravis? We appreciate that you may have some questions or need more information before making your submission…
Possibly you are wondering what a FcRn or complement inhibitor is? Do you want to know more about these new treatments, do you want to understand how they may fit with the existing treatments or how utilising them may reduce the burden of this condition. Would you like to understand why your submission is important and how to make it count?
Then you must register for the MAA webinar so that you can hear directly from expert neurologists and patient advocates. Speakers include A/Prof Stephen Reddel, A/Prof Stefan Blum, Dr Katherine Buzzard and Ms Ann Single from Patient Voice Initiative.
When? 5:30pm (AEDT)/4.30pm (AEST) on Wednesday 15 January 2025
Why? Learn about the types of treatments on offer, how to make a successful submission to PBAC for treatments of your choice, and understand why your voice will make a difference. The webinar will also include time for a Q&A session with our speakers and MAA board members.
Don’t worry if you can’t make this date or time because the webinar will be recorded. You do still need to register to ensure you can access the recording after the event. If you are not certain about how to participate please seek support from a friend or family member. Everyone is welcome to register.
Please also check out the MAA guidance on PBAC and the treatments via the MAA website, keep following updates by subscribing here, or contact your state association.
We look forward to you joining us for this educational webinar organised by the MAA and we thank Argenx for their support to make it happen.
