Living with Living with myasthenia gravis (MG) often means navigating new information, changing symptoms and treatment decisions. Whether you’ve been recently diagnosed or have been living with MG for many years, having access to reliable, practical resources can make managing your condition a little easier.
That’s exactly why the Myasthenia Alliance Australia (MAA) Patient Toolkit was created.
The Patient Toolkit brings together trusted resources, practical tools and educational information in one easy-to-access location. Rather than searching across multiple websites or wondering where to find the latest information, you’ll find a growing collection of resources designed specifically for Australians living with MG.
What’s inside the Patient Toolkit?
The toolkit continues to expand, but currently includes resources such as:
- MG Connect Symptom Tracker App
Track your symptoms using the MG-ADL scale, monitor changes over time and create reports that can support more informed conversations with your neurologist.
- Drugs to be Used with Caution
Access important information about medicines that should be used with caution if you have myasthenia gravis, helping you have informed discussions with your healthcare team.
- Know Your Type of MG
Understanding your diagnosis is an important part of managing your condition. This resource helps explain the different types of MG and why knowing your specific diagnosis matters.
- Educational Webinars
Learn directly from neurologists, healthcare professionals and experts through a growing library of educational webinars covering treatment, symptom management, research and practical living with MG.
- IVIG Treatment Information
Find practical guidance about intravenous immunoglobulin (IVIG), including how to access treatment and what to expect.
- Latest MG News and Updates
Stay informed with the latest articles, research updates, treatment announcements and patient resources as they become available.
Visit the Patient Tool Kit Now – https://myastheniaalliance.org.au/patient-tool-kit/
A resource that continues to grow
The Patient Toolkit isn’t static. New resources, educational content and practical tools are added regularly to ensure people living with MG have access to the latest information and support.
We encourage you to bookmark the page and check back often. Whether it’s a new webinar, a helpful guide or an important treatment update, you’ll always find the latest additions in one convenient place.
Help us build an even better toolkit
The best ideas often come from people living with MG.
If there’s a resource, guide, tool or educational topic that would make managing your condition easier, we’d love to hear from you. Your feedback helps us continue building a toolkit that genuinely supports the Australian MG community.
Together, we can ensure people living with myasthenia gravis have access to the information, tools and support they need, when they need it most.
Explore the Patient Toolkit today and discover resources designed to help you better understand and manage life with myasthenia gravis.