The MAA has partnered with the Edith Cowan University to conduct research on exploring the lived experience of people living with Myasthenia Gravis. The research team is led by Associate Professor Christopher Kueh.
Our project focuses on understanding the experiences of individuals living with Myasthenia Gravis (MG) in Australia. We want to know about the journey of getting diagnosed with MG, living with the condition, and what a typical day looks like for those affected.
This information will help us create better support systems and improve overall health outcomes for people with MG.
Participants will be invited to attend short sessions on-line with researchers and then use an online whiteboard called Miro to record their experiences of living with MG.
Participants will be given assistance along with instructions from researchers on how to use Miro.
The use of Miro will allow researchers to understand the experiences of Australian people living with MG.
To express your interest, to participate or for more information on this research, please email A/Professor Christopher c.kueh@ecu.edu.au
