Late last year, many people in our community participated in a survey conducted by Alexion Pharmaceuticals about the impact of generalised Myasthenia Gravis (gMG) on daily life and experiences with healthcare professionals.
The survey found gMG has a significant impact on people’s social, personal, and professional lives, with one in two retiring early. Restricted social life, loss of independence, and the ability to plan activities were the most reported impacts.
Seven in ten people said they would like more support from the healthcare system. Help to manage flare-ups and better understanding of daily life with gMG from their specialist were top priorities. The survey highlights are set out below.
